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July 28, 2017 - 8:30am

A local [email protected] fundraising walk will be held tomorrow Saturday, July 29th with registration starting at 6:00 p.m and a 1 mile casual evening walk starting at 7:30 p.m. at the Kiwanis Park on West Main Street Road in Batavia.  There will be a Silent Auction and more than 100 items/baskets that will be raffled off.  

Rachel Fisher, local [email protected] walk chairperson explains why she organizes this event.  “My daughter Maire, who is 5 years old, was diagnosed with a Chiari malformation and syringomyelia in 2014 and hydrocephalus in 2017.  In December 2014 Maire underwent a 6-hour brain surgery to help reduce the effects of the Chiari malformation and syringomyelia.  Surgery is not a cure and she will have annual neurosurgical appointments for the rest of her life.  Each day brings a new challenge as these conditions affect how her body responds to things like the weather, noises, light, and physical activities. 

My daughter and our family would really appreciate your support as we strive to find answers for individuals living with these disorders.  The goal is to help them live better, more pain-free days while raising awareness throughout the medical and lay communities.”

This walk is one of many around the country that will provide awareness, support, and important funding for the education and research programs of the Chiari & Syringomyelia Foundation (CSF).  Chiari (kee-AR-ee) is a malformation in which the back compartment of the skull is too small, causing the lower part of the brain to hang down into the spinal canal, which prevents cerebrospinal fluid from flowing properly, causing a wide range of symptoms. Syringomyelia (sear-IN-go-my-EEL-ya) occurs when a cavity, or “syrinx”, is formed inside the spinal cord from fluid build-up. A syrinx may injure nerves, causing pain that is hard to manage medically.

Currently, the only treatment for Chiari and Syringomyelia is highly invasive and expensive surgery. There is no cure.

If you want more information or to register, visit: http://unitenight.kintera.org/Batavia  You can also contact Rachel directly at [email protected] or 585-300-3159.

March 10, 2011 - 2:51pm
Event Date and Time: 
March 10, 2011 - 2:25pm to April 7, 2011 - 12:00pm

The Genesee-Orleans Cornell Club is pleased to announce a luncheon Thursday, April 7, 2011  with Dean Kathryn Boor'80 from Cornell University's College of Agriculture and Life Sciences. Ms. Boor was named the Ronald P. Lynch Dean of Agriculture and Life Sciences  last July. 

October 23, 2009 - 9:34am
posted by Joseph Langen in writing, research, keywords.


 

 Astoria Station


(Astoria Station)

JOE: Good morning Calliope.
CALLIOPE: Good morning Joe. How are you today?
JOE: Fine. Everything seems in order and I have no distractions facing me today.
CALLIOPE: Glad to hear it. What do you have planned?
JOE: Getting back to work.
CALLIOPE: Specifics please.
JOE: I have been gathering materials about search engine optimization and plan to start using them to my advantage.
CALLIOPE: Anything that still puzzles you?
JOE: I received a post from E-zine which listed search terms which their visitors used to find my articles.
CALLIOPE: Interesting.
JOE: I thought so. If I could find such a listing for terms visitors to my web site use, I would be quite grateful.
CALLIOPE: Where could you find such a list?
JOE: I'm not sure I could. So far I don't know how to look other than using a trial and error keyword program through Google keywords.
CALLIOPE: Something to explore.
JOE: There's always something. Talk with you tomorrow.

 

August 26, 2008 - 9:13am
posted by Joseph Langen in writing, research, references.

 


Slavery Museum- Curacao)

JOE: Good morning Calliope.
CALLIOPE: Good morning Joe. How are you today?
JOE: Well, thank you. I spent most of yesterday packing again. It is finally starting to look like I will be out of here eventually.
CALLIOPE: Did you learn anything about yourself while packing?
JOE: Yes, how little I actually need to survive. I once thought I needed to hang on to every book and scrap of paper I had.
CALLIOPE: And now you don't?
JOE: No. Things have changed over the years. Many books are available directly on the Internet. Many others are available through inter-library loan. I don't need everything immediately available as long as I can find it somewhere.
CALLIOPE: What about papers?
JOE: They aren't critical either. Things I wrote in the past are in the past. I am making an effort to live more in the moment. The past can clutter my life.
CALLIOPE: Do you think there might be times when you wish you had kept your past writings?
JOE: It's only happened once so far. I wish I had kept my position papers from my last years in the monastery. They would have been helpful in writing my memoir. But alas I didn't and the memoir turned out okay without them. I had to rely on my memory of those days. The book was probably different than it might have been on that account, but I don't think it suffered significantly.
CALLIOPE: Then maybe you are doing the right thing. What's up for today?
JOE: I have a column to write for Saturday which I think I will write about moving. I plan to at least start it today.
CALLIOPE: Will we talk tomorrow?
JOE: Probably not. I will be working in Leroy and away from the computer and staying in Rochester tomorrow night. I will contact you again on Thursday.
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