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'Skate for Jonah' to aid infant with brain tumor is Sunday evening at Falleti Ice Arena

By Billie Owens

Baby Jonah was diagnosed with a brain tumor in January. The 13-week-old started chemotherapy last month to shrink his tumor, but so far the treatment has been unsuccessful. He needs a shunt to relieve intercranial pressure and doctors need to do a brain biopsy to assess his condition and insure his medications are appropriate.

To help offset expenses, his family and friends are going to hold a benefit at the Falleti Ice Arena in Batavia starting at 5:30 p.m. on Sunday, March 15.

At "Skate for Jonah" there will be activities for everyone; bring the whole family. Cost is a $10 donation for ice time and skate rental. Pizza and refreshments will be available for purchase.

The Buffalo Sabres Hockey Team donated goods autographed to be raffled: a Gionta jersey, Foligno mask, and helmet.

The plan is for Jonah to continue receiving chemo every week for a year. The tumor is located behind his eyes and has caused nystagmus or involuntary eye movement. Despite everything this little man has gone through, he continues to smile, coo, laugh and snuggle with those who dote on him.

The ice arena is located at 22 Evans St.

If you'd like to help out and aren't able to attend the skating event, you can donate online at: http://www.gofundme.com/nxt1yc

Darlene Desjardins

With all of the good causes to donate our money to....this family will benefit not just from our donations but prayers. Please give if you can or post on your facebook to reach out to others who can help.

Mar 12, 2015, 12:47pm Permalink

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