In New York, there are more than half a million people providing unpaid care to a loved one with dementia. National Family Caregivers Month is the perfect time to get educated about dementia caregiving and ways to help.

Caring for someone with dementia is demanding: these caregivers on average provide more care for a longer period of time than other caregivers. A report released by the Alzheimer’s Association earlier this year found that New York’s dementia caregivers provided 884 million hours of care, valued at more than $19 billion dollars. With a looming shortage in the healthcare workforce and more people expected to develop dementia in the coming years, the burdens facing dementia caregivers are growing.

Dementia caregivers often take on these responsibilities while balancing careers and children. It’s not surprising that they find their own physical and mental health worsening due to stress. 

Dementia caregivers report higher rates of chronic conditions, including stroke, heart disease, diabetes, and cancer than other people. In New York, 59% of caregivers reported at least one chronic health condition. 

Dementia caregivers report higher rates of depression than caregivers for people with other medical conditions. In New York, 24.7% of dementia caregivers reported having depression. 

Amara May, director of program outreach at the Western New York Chapter of the Alzheimer’s Association, says, “Caring for someone with dementia is uniquely challenging. The caregiving tasks are intense and you’re doing them while watching your loved one gradually lose memory and function.” She continues, “Our goal at the Alzheimer’s Association is to help reduce sources of caregiver stress and help them find self-care strategies that work.” 

Debbie Gangemi of Hamburg assists her father, Richard, in caring for her mother, Donna Brese, who has Alzheimer’s. “It can get frustrating and stressful because of the unexpected,” she says. “Mom has a number of good days, but you just can’t anticipate when a bad day will happen.”

There are a range of self-care strategies caregivers can try to reduce stress. No single approach will work for everyone so it’s important to find what works for you. Options include: 

• Talk to someone you trust. This could be a friend, family member, clergy or counselor. The Alzheimer’s Association provides a 24/7 Helpline with dementia experts available anytime.
• Get outside. Even just a few minutes outdoors can improve your mood, especially on sunny days.
• Exercise. Movement is a proven approach to improve mental and physical health. Try a walk around the neighborhood or a local fitness class, which has the added benefit of being social.
• Try a mindfulness technique. Meditation, yoga, tai chi, and journaling are all options for mindfulness, which can reduce anxiety and depression and may even help reduce blood pressure and improve sleep quality.

Gangemi says she relies on her faith and family to help deal with stress, in addition to finding a healthy outlet by volunteering for the WNY Chapter. “When I do community outreach on behalf of the Alzheimer’s Association, I get to hear about other peoples’ struggles and learn how they cope with them,” she says. “I know not to take anything for granted.”

The Alzheimer’s Association Western New York Chapter offers free caregiver education, support groups, and care planning meetings. You can access these resources by calling 800.272.3900 or visiting alz.org/wny.

Judging by the calls received at the Alzheimer’s Association® Western New York Chapter office from dementia caregivers, COVID-19 continues to be a major challenge.

It compounds the struggle for care partners already challenged by the demands of providing day-to-day care for someone they love who has Alzheimer's disease or other dementia.

While the association's physical office remains closed to ensure the health and safety of our staff and the public, it continues to provide free resources such as virtual support groups.

The Chapter oversees several monthly caregiver support group meetings in the Genesee County region, which allows dementia caregivers to connect with others facing similar challenges and hear advice for overcoming them from care partners in local area.

These programs generally run an hour in length and are free to attend via telephone or the Zoom video chat application. Additionally, there are no residency or minimum attendance requirements. 

Caregivers looking for guidance, compassion and time away are welcome to join the discussion by phone on the third Thursday of every month at 1 p.m., including these Nov. 19 and Dec. 17. There is also a meeting accessible by phone or Zoom on the third Wednesday at 7 p.m. on these upcoming dates: Oct. 21, Nov. 18 and Dec. 16.

While there are no fees, preregistration is a requirement, by calling 1-800-272-3900 at any time. Online registration is also an option at alz.org/CRF. If you are unfamiliar with the Zoom app, call the Chapter office for a quick and easy practice session at (716) 626-0600, ext. 313.

Genesee County residents also have access to caregiving resources and programs through the Chapter’s partnership with the Genesee County Office for the Aging. To learn more about local caregiver resources, call the county office at (585) 343-1611.

The Alzheimer's Association Western New York Chapter is now offering free, live, virtual programs and services to ensure dementia caregivers, those living with the disease and family and friends have access to vital information.

Across New York, it is estimated there are more than 400,000 individuals living with some type of dementia, with another 1 million+ people providing some kind of care for them.

Their needs for access to help, support and education is ongoing, and to address those needs, the Alzheimer’s Association Western New York Chapter is offering a number of virtual programs accessible from any location via computer or mobile device.

Below are education programs scheduled for April, plus information on how to access the programs. Confidential care-planning meetings are also ongoing via virtual tools, as are caregiver support group meetings.

Chapter dementia care consultants are planning a number of free online classes for participants to attend from the safety and comfort of their own homes. In the month of April, these education programs will be offered virtually:

Overview of Virtual Programs and Services

• Friday, April 3 -- 2 p.m.
• Friday, April 17 - 2 p.m.

Understanding Alzheimer's Disease and Dementia

• Tuesday, April 7 -- noon
• Tuesday, April 14 -- noon
• Tuesday, April 21 -- noon
• Tuesday, April 28 – noon
• Wednesday, April 29 -- 8 a.m.

Know the 10 Warning Signs

• Friday, April 10 -- 2 p.m.
• Friday, April 24 -- 2 p.m.

Effective Communication Strategies

• Thursday, April 2 -- 6 p.m.
• Wednesday, April 22 -- 8 a.m.
• Thursday, April 30 -- 6 p.m.

Understanding and Responding to Dementia-Related Behaviors

• Thursday, April 9 -- 6 p.m.
• Wednesday, April 15 -- 8 a.m.

Legal and Financial Planning for Dementia

• Wednesday, April 8 -- 8 a.m.
• Thursday, April 16 – 6 p.m.

Dementia Conversations

• Thursday, April 23 -- 6 p.m.

Meaningful Activities for Family Caregivers

• Monday, April 20 -- 1:30 p.m.

To register for any/all of these classes and learn how to access them, visit: bit.ly/WNYeducation or call 1.800.272.3900.

Caregiver support group meeting sare also being offered in a number of ways, including telephone conference calls and webinars. To learn more about taking part in a virtual support group meeting, visit: bit.ly/WNYsupport.

The Association’s around-the-clock Helpline is also available to answer questions about programs and how to access them, address concerns, and discuss other resources. That number is 1-800-272-3900.

Confidential care consultations to discuss care planning, finances, and more will continue to be available via telephone to the Helpline: 1-800-272-3900. Video chats are also possible for these free virtual meetings.

And finally, the Association has a dedicated website to help caregivers whose loved one is at home and those whose loved one is residing in an assisted living facility. That website is: alz.org/COVID19.

The Alzheimer’s Association® Western New York Chapter offers a number of free education programs about dementia and support services for those living with dementia and caregivers all across the region and has a program scheduled in Genesee County in January.

Chapter experts will present "Know the 10 Warning Signs" in Batavia on Tuesday, Jan. 21, at 4:30 p.m. The free class, at The Manor House (427 E. Main St.), outlines common changes that may indicate some type of cognitive impairment and lead to early detection and diagnosis of Alzheimer’s disease or other dementia.

“This is a great tool for starting a conversation with your doctor about changes you notice,” says WNY Chapter Program Director Rachel Rotach. “We also have resources across Genesee County to help those living with the disease and their care partners to ensure they are living a full life while making plans for the future”.

Preregistration is strongly encouraged by calling the Chapter during traditional business hours at (716) 626-0600, ext. 313, or 24-hours a day, 7-days a week at 800-272-3900

Additionally, the Chapter oversees several monthly caregiver support group meetings across the county, which allow caregivers to connect with others facing similar challenges and hear advice for overcoming them:

• 3^rd Wednesday (Jan. 15) at 7 p.m. – Richmond Memorial Library, 19 Ross St. in Batavia
• 3^rd Thursday (Jan. 16) at 1 p.m. – Genesee County Office for the Aging, 12 Bank St. in Batavia
• 2^nd Monday (Jan. 13) at 2 p.m. – The Greens of Le Roy, 1 West Ave. in Le Roy

Community social programs, or respites, are also available every month in Batavia and Corfu. This program provides relief to those who care for individuals with Alzheimer’s disease or other dementia and offers them some time to refresh and recharge, while their loved one is engaged in social activities in a safe environment.

St. James Episcopal Church at 405 E. Main St. in Batavia offers a four-hour program, starting at 10:30 a.m. on the second Monday of every month (Jan. 13). Those interested in this respite should call Barbara King at (585) 343-6802.

First Presbyterian Church of Batavia also offers this free service on the fourth Monday (Jan. 27) from 10:30 a.m.-2:30 p.m. For additional information, please call Mickey Rodak at (585) 455-5940.

And Indian Falls United Methodist Church in Corfu at 7908 Alleghany Road offers a respite program on the third Wednesday (Jan. 15 ) from 10 a.m. to 2 p.m. For more information, call Celinda McQuiston at (585) 762-9105.

To learn more about other Alzheimer’s Association programs and services, contact the WNY Chapter office at 800-272-3900. You can also access dementia care programs and resources by calling the Genesee County Office for the Aging at (585) 343-1611.

About the Alzheimer’s Association
The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

The Batavia Walk to End Alzheimer’s will take place on Saturday, Sept. 21.

It is part of the global Walk to End Alzheimer’s -- the world’s largest event to raise awareness and funds for Alzheimer’s care, support and research.

On Saturday, Sept. 21, from 9 a.m. to noon, approximately 750 individuals from the greater Genesee County area — family members, caregivers, employers, friends and persons living with dementia — will honor all those impacted by the disease and fight for a world without Alzheimer’s.

Premier Genesee Center for Nursing and Rehabilitation at 278 Bank St. in Batavia is hosting the event, which begins and ends there.

Proceeds from the walk ensure the Alzheimer’s Association Western New York Chapter can continue to provide supportive services and education at no cost, while raising awareness of Alzheimer’s disease and Association services all across the Genesee Valley.

While there is no fee to register or participate, we strongly encourage participants to fundraise to contribute to the cause and the Chapter offers a number of tools and materials to help with fundraising.

The Center’s outdoor park offers space to enjoy snacks and refreshments, visit with local vendors, and buy basket and 50/50 raffle tickets, while the roughly two-mile walk route offers a pleasant stroll through a lovely neighborhood.

Register today at alz.org/Walk and start fundraising to earn terrific incentives, including the 2019 purple Walk T-shirt.

Please call (716) 626-0600 or 800-272-3900 with any questions.

Do you know the difference between Alzheimer’s disease and dementia? Learn the facts during a free educational program in Batavia."Understanding Alzheimer’s Disease and Dementia" is a free program that will be presented by experts with the Alzheimer’s Association® Western New York Chapter at 11 a.m. on Tuesday, Aug. 6.

The Genesee County Office of Aging at 2 Bank Street will host the class.

While Alzheimer’s disease currently cannot be prevented or slowed, there are steps to take and recommendations to follow in the areas of diet and nutrition, exercise and cognitive activity that promote healthy aging.

Learn more during a free educational program offered by dementia experts at the Chapter in August. "Healthy Living for your Brain and Body" will be presented at 1 p.m. at the New York State Veterans Home at 220 Richmond Ave. in Batavia on Monday, Aug. 12.

Registration is required for both programs by calling the Chapter office during traditional business hours at (716) 626-0600, ext. 313, or 24-hours a day, 7-days a week at 800-272-3900.

Additionally, the Chapter oversees several monthly caregiver support group meetings across the county, which allow caregivers to connect with others facing similar challenges and hear advice for overcoming them:

• 3^rd Wednesday (Aug. 21) at 7 p.m. – Richmond Memorial Library, 19 Ross St. in Batavia
• 3^rd Thursday (Aug. 22) at 1 p.m. – Genesee County Office for the Aging, 12 Bank St. in Batavia
• 2^nd Monday (Aug. 12) at 2 p.m. – The Greens of Le Roy, 1 West Ave. in Le Roy

Community social programs, or respites, are also available every month in Batavia and Corfu. This program provides relief to those who care for individuals with Alzheimer’s disease or other dementia and offers them some time to refresh and recharge, while their loved one is engaged in social activities in a safe environment.

First Presbyterian Church of Batavia offers this free service on the fourth Monday (Aug. 26) from 10:30 a.m. - 2:30 p.m. For additional information, please call Mickey Rodak at (585) 455-5940.

Local residents now have a second Batavia location for this service. On the second Monday of each month (Aug. 12) St. James Episcopal Church at 405 E. Main St. will offer a four-hour program, starting at 10:30 a.m. Those interested in this respite should call Barbara King at (585) 343-6802.

Indian Falls United Methodist Church at 7908 Allegany Road offers a respite program on the third Wednesday (Aug. 21) from 10:30 a.m. to 2:30 p.m. For more information, call Celinda McQuiston at (585) 762-9105.

To learn more about other Alzheimer’s Association programs and services, contact the WNY Chapter office at 800-272-3900.

You can also access dementia care programs and resources by calling the Genesee County Office for the Aging at (585) 343-1611.

Memory loss is not a normal part of aging, and it could be an indication of something more serious such as disease that is causing dementia symptoms. The Alzheimer’s Association® Western New York Chapter offers a free education program that discusses the basics about Alzheimer’s disease and dementia, which will be offered in Genesee County in May.

"Know the 10 Warning Signs" will be presented at 2 p.m. on Tuesday, May 7. Genesee County Aging Services at 2 Bank St. is hosting the presentation. 

On Monday, May 13, Chapter dementia experts will be in Batavia to present "Understanding and Responding to Dementia-Related Behaviors." This program is aimed at helping caregivers decode behavioral messages, identify common behavior triggers and strategize to overcome these challenges. The free class is set for 1 p.m. in the NYS Veterans Home at 220 Richmond Ave. 

Registration is required for both programs by calling the Chapter office during traditional business hours at (716) 626-0600, ext. 313, or 24-hours a day, 7 days a week at 800-272-3900.

A special joint enrichment social program is set for Thursday, May 30 at the Jello-O Gallery Museum in Le Roy. This free activity is for people living with dementia and their care partner and highlights living well with a dementia diagnosis by offering the opportunity to socialize, learn and have fun with others facing similar circumstances. Registration is required by calling Lauren Ashburn or Shelby Edgerly at (716) 626-0600.

Additionally, the Chapter oversees several monthly caregiver support group meetings across the county, which allow caregivers to connect with others facing similar challenges and hear advice for overcoming them:

• 3^rd Wednesday (May 15) at 7 p.m. – Richmond Memorial Library, 19 Ross St. in Batavia
• 3^rd Thursday (May 16) at 1 p.m. – Genesee County Office for the Aging, 12 Bank St. in Batavia
• 2^nd Monday (May 13) at 2 p.m. – The Greens of Le Roy, 1 West Ave. in Le Roy

Community social programs, or respites, are also available every month in Batavia and Corfu. This program provides relief to those who care for individuals with Alzheimer’s disease or other dementia and offers them some time to refresh and recharge, while their loved one is engaged in social activities in a safe environment.

First Presbyterian Church of Batavia offers this free service on the fourth Monday (May 27) from 10:30 a.m. to 2:30 p.m. For additional information, please call Mickey Rodak at (585) 455-5940.

Indian Falls United Methodist Church at 7908 Alleghany Road, Corfu, offers a respite program on the third Wednesday (May 15) from 10:30 a.m. to 2:30 p.m. For more information, call Celinda McQuiston at (585) 762-9105. 

To learn more about other Alzheimer’s Association programs and services, contact the WNY Chapter office at 800-272-3900.

You can also access dementia care programs and resources by calling the Genesee County Office for the Aging at (585) 343-1611.

The Alzheimer’s Association® Western New York Chapter is offering a number of free programs and supportive services across Genesee County in March.

Chapter dementia educators will present "Effective Communication Strategies" at 5 p.m. on Wednesday, March 13, at The Manor House at 427 E. Main St. in Batavia.

This program is ideal for care partners of those living with Alzheimer’s disease or other dementia, as it offers verbal and nonverbal strategies for caregivers to more effectively understand and communicate. Dinner will also be served, so preregistration is required by calling 1.800.272.3900 or 716.626.0600.

Additionally, the Chapter trains facilitators to lead several monthly caregiver support groups across the county, which allow caregivers to connect with others facing similar challenges and hear advice for overcoming them:

• Third Wednesday (March 20) at 7 p.m. – Richmond Memorial Library, 19 Ross St. in Batavia
• Third Thursday (March 21) at 1 p.m. – Genesee County Office for the Aging, 12 Bank St. in Batavia
• Second Monday (March 11) at 2 p.m. – The Greens of Le Roy, 1 West Ave. in Le Roy

Community social programs, or respites, are also available every month in Batavia and Corfu. This program provides relief to those who care for individuals with Alzheimer’s disease or other dementia and offers them some time to refresh and re-charge, while their loved one is engaged in social activities in a safe environment.

First Presbyterian Church of Batavia offers this free service on the fourth Monday (March 25) from 10:30 a.m.-2:30 p.m. For additional information, please call Mickey Rodak at (585) 455-5940.

Indian Falls United Methodist Church at 7908 Allegany Road offers a respite program on the third Wednesday (March 20) from 10:30 a.m. to 2:30 p.m. For more information, call Celinda McQuiston at (585) 762-9105. 

To learn more about other Alzheimer’s Association programs and services, contact the WNY Chapter office at 1.800.272.3900.

You can also access dementia care programs and resources by calling the Genesee County Office for the Aging at 585.343.1611.

Holiday visits to older loved ones may raise questions about a person’s physical and cognitive health, especially if it’s been a while since the last visit. Although some change in cognitive ability can occur with age, memory problems that impact daily living are not a part of typical aging.

Recognizing the difference between typical aging and potentially more serious problems can help identify when it may be time to see a doctor.

The Alzheimer’s Association® Western New York Chapter is an excellent resource for those with questions about typical age-related memory lapses and indications of more serious cognitive impairment.

The Chapter offers free educational programs that include a discussion of the 10 Warning Signs:

• memory loss that disrupts daily life -- forgetting recently learned information, important dates or events;
• challenges in planning or solving problems, such as trouble following a familiar recipe; 
• difficulty completing familiar tasks, such as a budget or playing a favorite game;
• confusion with time or place, including losing track of the seasons;
• trouble understanding visual images and spatial relationships, including trouble reading or recognizing the face in the mirror;
• new problems with words in speaking or writing, including repetitive conversations;
• misplacing things and losing the ability to retrace steps, or accusing others of stealing items they can’t find;
• decreased or poor judgment, such as giving large amounts of money to telemarketers;
• withdrawal from work or social activities, or lack of interest in sports;
• changes in mood and personality that can include confusion, suspicion, depression, fear or anxiety.

Every year around the 2017 Thanksgiving holiday, the Alzheimer’s Association sees increases in calls to its 24-hour Helpline (800.272.3900), as people visit with friends and family they may not see as frequently during the year. That phone line is always staffed by trained experts, who provide confidential consultations around-the-clock, andthis holiday season will be no different.

Those with questions or concerns about memory lapses or behavioral changes in their loved ones will find compassionate people who can answer questions or listen to concerns at any time of the day or night through the long holiday weekend. Information can also be found online at www.alz.org/wny.

Experts from the WNY Chapter are also available to arrange private, in-person consultations via that same toll-free number: 800.272.3900.

About the Alzheimer’s Association
The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

About the Western New York Chapter
The local Chapter provides programs, services and other resources for those living with dementia, their care partners, healthcare professionals and the public across eight counties: Allegany, Cattaraugus, Chautauqua, Erie, Genesee, Niagara, Orleans and Wyoming. You can learn more by calling (716) 626.0600 during traditional business hours or 24/7 at 1.800.272.3900 or visiting online at alz.org/WNY