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brooklyn sputore

January 10, 2012 - 3:48pm
posted by Howard B. Owens in batavia, brooklyn sputore.

Brooklyn Grace Sputore, the 13-month-old who was diagnosed before she was born with a form of an aneurysm, is cured.

Brooklyn's parents, Mike and Julie Sputore, took her to New York City yesterday expecting her to undergo a third surgery to close the malformation, but in a pre-surgery MRI, doctors discovered the malformation had finished healing itself.

"We're very happy," said Julie, who thanked the community for its support and prayers.

The condition is known as Vein of Galen Brain Malformation and can be life threatening, but because an ultrasound uncovered the problem in Julie's 37th week of pregnancy, doctors were able to work quickly to cure it.

"The last time we were here the doctor said it was 99 percent closed up and he was hoping it would be closed up when we came back," Julie said. "We didn't know if that was just something he said to everybody, but it actually did happen."

Though cured, Sputore explained, Brooklyn will need ongoing medical care.

In a year, she will return to NYC for an MRI to ensure the malformation hasn't reopened and will need annual MRIs for a couple of years. She will also need to see a cardiologist every year for the rest of her life.

The malformation also caused fluid to develop in Brooklyn's skull and so a shunt was installed to drain the fluid into her bladder. Because the bodies of babies who have shunts installed become dependent on them, Brooklyn is likely to have the shunt for the rest of her life, Julie said. She will need to go to Buffalo every few months to have the shunt checked.

In a way, the fact doctors found the ultrasound when they did was a bit of a miracle.

Sputore was in her 37th week of pregnancy and didn't need another ultrasound, but wanted to see the picture.

"That's when they found it and if we didn't have it done, we would have never known," Sputore said. "She could have died from the VOG turning into an aneurysm or the VOG making her have heart failure."

Brooklyn will be home on Thursday.

Photo: Brooklyn with Dr. Alejandro Berenstein from her visit to NYC for surgery in July. Photo courtesy Julie Sputore.

April 10, 2011 - 11:07pm
posted by Howard B. Owens in batavia, brooklyn sputore.

More than 1,200 spaghetti dinners were served today at St. Joe's in support of Brooklyn Sputore, who has had five surgeries to correct a rare medical condition, Vein of Galen Brain Malformation, and who faces more surgeries.

Her grandfather, Paul Sputore, said he's handling the medical bills for the family and so far they total more than $100,000. He said the family and more than 150 volunteers were hoping to raise from $15,000 to $20,000 today.

The community support for Brooklyn has been outstanding, Sputore said, including many anonymous donations delivered to his house.

"It's more than I ever could have imagined from the community," Sputore said. "Everybody has just been fantastic."

Local businesses and individuals donated more than 250 gift baskets for a Chinese auction at today's lunch/dinner.

Above, Brooklynn, 7, and Portia, 7, talk with Brooklyn's mom, Julie, while delivering a donation of $439.25 raised by local Girl Scouts yesterday.

More pictures after the jump:

April 9, 2011 - 1:06pm
posted by Daniel Crofts in fundraisers, girl scouts, brooklyn sputore.

Daisy Girl Scouts Alyssa Ognibene, Lidia Pehrson, Brooklynn Pariso, Arianna Armstrong and Kelsey Verton (front, left to right) were on Thomas Avenue in the city today along with troupe co-leader Tara Pariso (back).

They were collecting cans to raise money for Brooklyn Sputore, a baby girl who suffers from a life-threatening condition called Vein of Galen Brain Malformation. Click on the following link for previous coverage: www.thebatavian.com/tags/brooklyn-sputore

Tara attends Northgate Free Methodist Church along with the Sputore family. She wanted to do something to help Brooklyn while at the same time giving the Daisies a community service project.

As of noon today, the girls had been to 25 houses in Batavia and collected more than 2,000 cans and bottles. They will present their proceeds to the family tomorrow at a fundraiser for Brooklyn, which will take place at St. Joseph's School, 2 Summit St. in Batavia and include a spaghetti dinner, Chinese auction and other raffles.

Pre-sale tickets to tomorrow's fundraiser can be purchased from Paul Sputore, 781-8138, or at the door. Cost is $8 for adults and $4 for children 12 and younger. But you might want to hurry, because there are less than 50 tickets left.

For more information on Brooklyn and the fundraiser, please visit the family's Facebook page via the following link: www.facebook.com/pages/Brooklyn-Grace-Sputore/122679241137680?sk=info#!/pages/Brooklyn-Grace-Sputore/122679241137680?sk=wall

March 25, 2011 - 7:26pm
posted by Howard B. Owens in batavia, Pauly's Pizza, brooklyn sputore.

The staff of Pauly's Pizza are wearing "Brooklyn" shirts tonight as part of an effort to raise awareness of the plight of little Brooklyn Grace Sputore, who suffers from Vein of Galen Brain Malformation, which is a form of an aneurysm. This is a life-threatening condition that requires special care.

Pauly's is accepting donations on behalf of baby Brooklyn.

There is a fundraiser planned from 12:30 to 5:30 p.m. on Sunday, April 10 at St. Joseph's School at 2 Summit St., Batavia. This will include a spaghetti dinner, a Chinese auction and other raffles.

The tickets can be purchased pre-sale from Paul Sputore 781-8138 and other committee members. Tickets will also be available at the door. Brooklyn's Journey T-shirts are $15 and can be purchased from Bruce Dedman 716-560-0031 or T.F. Brown’s/Mancuso Bowling Center. All proceeds will assist the Sputore family in this difficult time.

The Sputore famly were at Pauly's this evening. Below is a picture of Brooklyn and her mom, Julie.

March 15, 2011 - 3:37pm
posted by Billie Owens in batavia, charity, brooklyn sputore.

Here's a letter to the community from friends of the Sputore family.

Dear Friends, Families & Business Owners:

This letter is to inform you of “Brooklyn’s Journey” -- a fundraising effort to assist a beautiful young family in Batavia whose child is facing a life-threatening situation.

Beyond her big blue eyes and her fair skin, Brooklyn Grace Sputore is suffering from a condition called Vein of Galen Brain Malformation, which is a form of an aneurysm. This is a life-threatening condition that requires special care.

The family will be traveling to Roosevelt Hospital in New York City for the appropriate treatment, including a number of surgeries.

Brooklyn Sputore is the daughter of Michael and Julie Sputore, of Batavia, the grandaughter of Paul and Mary Sputore, and Doug and Jan Hawley, both of Batavia. Michael and Julie also have a 5-year-old son.

In addition to the challenges of the condition alone, the parents will need to take leave of their jobs while caring for the child, which will create further financial need.

“Brooklyn's Journey” is a community effort to support the challenges this young family faces. There is a fundraiser planned for April 10 at St. Joseph's School at 2 Summit St., Batavia, from 12:30-5:30 p.m.

This will include a spaghetti dinner, a Chinese auction and other raffles. The tickets can be purchased pre-sale from Paul Sputore 781-8138 and other committee members. Tickets will also be available at the door.

Brooklyn's Journey T-shirts are $15 and can be purchased from Bruce Dedman 716-560-0031 or T.F. Brown’s /Mancuso Bowling Center. All proceeds will assist this family in this difficult time.

The family is seeking donations of baskets, prizes or gift certificates for the fundraiser. Monetary donations are gratefully accepted and can be sent to Brooklyn Sputore, c/o: Paul & Mary Sputore, 18 Sumner St., Batavia.

Please consider helping this family. Any questions, ideas or for more info, please call Chris Sputore (716) 316-3744. Your help is gratefully appreciated!

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